When Abby and I first found out that our first child (Amber) had albinism, we were worried about what that would mean. Our minds feared the worst: that they would get burned every time they went out into the sun, that they wouldn’t be able to see across the room, that they’d be called “freaks” and laughed at because of their unusual appearance. After things settled down, though, we realized that it’s not that big of a deal. So when our second child (Corban) came along and we saw right away that he had albinism too, we were fine with it.
Everybody has something. We all have things we need to overcome or deal with. For our children, their albinism means that they’ll need to get the front row in class, put on lots of sunscreen, and maybe not drive when they’re older.
But there are also some positives. Having beautiful blond hair and blue eyes makes them stand out. People compliment their appearance all the time. When they’re older, their unique appearance will make them memorable, which may give them an advantage in whatever they decide to do. I’m not saying that having albinism is the key to success, but I am saying that having the right attitude about it can turn it into a positive rather than negative trait.
While writing this post, Abby asked me what I was doing, and I told her I was writing a post about parenting children with albinism. Without delay, she stated that it was simply “parenting up close.” That pretty much sums it up. We get a lot closer to them when we smile, we wave toys right in front of their eyes when we want them to play with them, and we make sure not to be too far from them at the playground (otherwise they may not find their way back to us!). Parenting children with albinism is pretty much the same as parenting children without albinism – only closer (and more sunscreen).







